Links to Useful Sites


Disability Organizations

Arthritis | Autism | Blindness/Low Vision | Brain Injury and Stroke | Cerebral Palsy | Communication and Speech | Comprehensive Disability | Deafblindness | Deafness | Developmental Disabilities | Diabetes | Down Syndrome | Epilepsy | Healthcare | Learning Disabilities and ADD | Mental Health | Mental Retardation | Multiple Sclerosis | Muscular Dystrophy | National and Regional | Post Polio Syndrome | Short Stature | Spina Bifida | Spinal Cord Injury | State and Local | Substance Abuse | Tourette Syndrome

Arthritis

About.com - Arthritis Homepage
News on arthritis and links to related sites.
Website: http://arthritis.about.com/health/arthritis/mbody.htm

Arthritis Foundation
Large support/advocacy group devoted to educating the public about various issues involved with arthritis.
Website: http://www.arthritis.org/

Atena Inteli Health – Arthritis
Basic and general information on arthritis
Website: http://www.intelihealth.com/IH/ihtIH/24479/9071/9071.html?k=navx408x9071

CDC – Arthritis
Information, resources and links on arthritis
Website: http://www.cdc.gov/arthritis/

Doctors Guide to Arthritis
The latest medical news and information for patients or friends/parents of patients diagnosed with arthritis.
Website: http://www.pslgroup.com/ARTHRITIS.HTM

Medline Plus – Arthritis
General information, guidelines, resources on arthritis
Website: http://www.nlm.nih.gov/medlineplus/arthritis.html

National Institute of Arthritis and Musculoskeletal and Skin Diseases-NIH
The NIAMS conducts and supports basic, clinical, and epidemiologic research and disseminates information of many of the most debilitating diseases affecting the nations health.
Website: http://www.nih.gov/niams/

Web MD – Arthritis Health Center
News, information, articles on Arthritis and topics related to arthritis.
Website: http://arthritis.webmd.com/



Autism

Autism Resources
Information & links on autism and Aspergers Syndrome.
Website: http://www.autism-resources.com/

Autism Society of America
Information & links on autism and Aspergers Syndrome.
Website: http://www.autism-society.org

Autism Speaks
Organization dedicated to people having autism or families and interested individuals. It has information, resources, links and various activities regarding autism.
Website: http://www.autismspeaks.org

CDC – autism
Information, links, resources on autism
Website: http://www.cdc.gov/ncbddd/autism/

Center for the Study of Autism
Numerous links to Autism Resources.
Website: http://www.autism.org/

Online Asperger Syndrome Information & Support
Research, resources, chat room and message board.
Website: http://www.udel.edu/bkirby/asperger/

Science Daily
View the latest developments and research on autism
Website: http://www.sciencedaily.com/news/mind_brain/autism/



Blindness/Low Vision

American Council of the Blind
National advocacy organization for people with vision impairments.
Website: http://www.acb.org/

American Foundation for the Blind
National non-profit organization devoted to serving people with visual impairments through the collection and dissemination of information, the identification and resolution of legislative issues, and education of the general public.
Website: http://www.afb.org/

Assistive Media
Provides audio versions of written materials.
Website: http://www.assistivemedia.org/

Blind Childrens Center
Serves children with visual impairments from birth to school age.
Website: http://www.blindcntr.org

Blind Links
Links to a variety of resources for people who are blind.
Website: http://www.autopenhosting.org/w3c/rblind.html

Colorado Department of Education – Blindness/Low Vision
Information and resources on education careers, national documents, activities, scholarship for families and people with vision- impairments.
Website: http://www.cde.state.co.us/cdesped/SD-BLV.asp

Delaware Division for the Visually Impaired
This federal/state program assists people from Delaware with disabilities to obtain and retain employment and maximize their ability to live independently in their communities. Phone: 302-577-4730.
Website: http://www.dhss.delaware.gov/dhss/dvi/index.html

IO - Iowa Department for the Blind
This federal/state program assists people from Iowa with disabilities to obtain and retain employment and maximize their ability to live independently in their communities. Phone: 515-281-1334. TTY: 515-281-1355.
Website: http://www.blind.state.ia.us

Library for the Blind and Physically Handicapped
Library of Congress Talking and Braille books.
Website: http://www.loc.gov/nls/

National Federation of the Blind
Advocates for issues affecting those with visual impairments.
Website: http://www.nfb.org/

National Federation of the Blind On-Line Store
Website for ordering assistive Aids & Appliances for individuals who are blind or have low vision.
Website: http://secure.nfb.org/ecommerce/asp/default.asp

Recording for the Blind and Dyslexic
Provides textbooks, educational and reference materials to people who cannot read standard print.
Website: http://www.rfbd.org/

Seattle Lighthouse for the Blind
Jobs, training, and vocational services for people who are blind. On-line shop.
Website: http://www.seattlelighthouse.org

Smith-Kettlewell RERC
This Rehabilitation Engineering Research Center (RERC) conducts R&D for persons who are blind or have visual impairments. Located at Smith-Kettlewell Eye Research Institute and funded by NIDRR.
Website: http://www.ski.org/Rehab/

The Low Vision Gateway
Information, resources and links on vision loss, low- impairment, low-vision aids and rehabilitation.
Website: http://www.lowvision.org/

The Rehabilitation Research and Training Center on Blindness and Low Vision (RRTC)
For employment and independent living help for individuals with visual impairments.
Website: http://www.blind.msstate.edu/

The Vision Learning Center – Living with low vision
Low vision assistant resources and tips for people or families having people with low vision.
Website: http://www.preventblindness.org/eye_problems/lowvision.html



Brain Injury and Stroke

American Stroke Association
Information and resources on stroke for stroke patients as well as for health professionals.
Website: http://www.strokeassociation.org/

Brain Injury Association
Provides information on brain injury prevention, research, education, advocacy, and links.
Website: http://www.biausa.org/

BrainInjury.com
Medical and legal resources on brain injury
Website: http://www.braininjury.com

Dr Diane
Website full of information about brain injury with resources, links and training information
Website: http://www.health-helper.com/brain/

eMedicine Health – Stroke Center
Stroke glossary of medical terms, links, doctors’ views and suggestions, references, information on prevention and medication and much more.
Website: http://www.medicinenet.com/stroke/index.htm

Institute for Cognitive Prosthetics
Utilizes computer technology to assist in everyday activities for individuals who have sustained brain injuries.
Website: http://www.brain-rehab.com/

National Center for Injury Prevention – TBI
Resources, fact sheets, publications and information on Traumatic Brain Injury
Website: http://www.cdc.gov/ncipc/tbi/TBI.htm

National Institute of Neurological and Stroke
News, trainings, resources, funding and information on strokes.
Website: http://www.ninds.nih.gov/

National Stroke Association
Information and links to resources on stroke.
Website: http://www.stroke.org/

The Brain Injury Information Network
Provides resources, links, and support for people with Brain Injury.
Website: http://www.tbinet.org/

Traumatic Brain Injury Care System
Provides information on the Center and links to TBI resources.
Website: http://main.uab.edu/show.asp?durki=9505



Cerebral Palsy

About Cerebral Palsy
Information on Spastic, Ataxic, and Athetoid Cerebral Palsy, including history, causes, symptoms, therapy, and treatments. Features articles, links and a free 'Ask the Doctor' service where people can post questions.
Website: http://www.about-cerebral-palsy.org/

An information site for individuals with cerebral palsy and for families with children with cerebral
Discussion forum, information, resources and links on cerebral palsy.
Website: http://www.cerebralpalsy.com/

Cerebral Palsy Help
Offers valuable help for children with cerebral palsy. Free advice from Cerebral Palsy Specialist doctors.
Website: http://www.cerebralpalsyhelp.com

Cerebral Palsy Information
Information on treatment, causes, diagnosis on cerebral palsy and free case evaluation.
Website: http://www.cerebralpalsyinfo.org/

Cerebral Palsy Institute
Information, definitions, treatments, resources and legal assistance with cerebral palsy.
Website: http://www.cerebralpalsyinstitute.org/

eMedicine Health – Cerebral Palsy Center
Articles, health news, glossary, resources, references and much more on cerebral palsy.
Website: http://www.medicinenet.com/cerebral_palsy/index.htm

United Cerebral Palsy
Support/Advocacy group devoted to increasing the inclusion of people with Cerebral Palsy and other disabilities into every facet of society.
Website: http://www.ucp.org/



Communication and Speech

Augmentative Communication Inc.
Resources, information, CDs, DVDs, articles, books and much more on augmentative communication.
Website: http://www.augcominc.com/

Augmentative Communication On-line Users Group
E-mail listserv for augmentative communication users.
Website: http://www.temple.edu/instituteondisabilities/programs/assistive/acolug.htm

Child Development Institute – Children with communication disorder
Information, articles, and products for parents including resources for children and parents with children having communication and speech disabilities.
Website: http://www.childdevelopmentinfo.com/disorders/children_with_communication_disorders.shtml

Childhood Apraxia of Speech Association
The Childhood Apraxia of Speech Association is part of Apraxia-KIDS. It is a non-profit organization whose mission is to strengthen the support systems in the lives of children with apraxia so that each child is given the best opportunity to develop speech.
Website: http://www.apraxia-kids.org

Comeunity.com – Children with communication disorder
Articles, information for parents, resources regarding children with communication and speech disorder.
Website: http://www.comeunity.com/disability/speech/communication.html

International Society for Augmentative and Alternative Communication
Publications, events, resources for augmentative communication users.
Website: http://www.isaac-online.org/

Net Connections for Communication Disorders and Sciences
Website aimed at cataloging the many types of resources and information concerning communication disorders for the benefit of those with communications disorders, their families, and professionals and students in the field.
Website: http://www.mnsu.edu/comdis/kuster2/welcome.html

Speech Disability, Using phone is not a problem
Provides services to people with speech disabilities, links and resources.
Website: http://www.beckyspeaks.org/

STS News
Provides directory of Speech to Speech Relay services in each state.
Website: http://www.stsnews.com/

The Stuttering Foundation
Provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering.
Website: http://www.stutteringhelp.org



Comprehensive Disability

American Association of People with Disabilities
National nonprofit cross-disability member organization dedicated to ensuring economic self-sufficiency and political empowerment for people with disabilities.
Website: http://www.aapd-dc.org/

Beach Center on Families and Disability
Website of a rehabilitation research and training center on public policies that affect families who have children with disabilities. Provides resources and information on disability issues.
Website: http://www.beachcenter.org/

Cornucopia of Disability Information
A community resource for consumers and professionals that provides disability information in a wide variety of areas.
Website: http://codi.buffalo.edu/

DisAbilities Unlimited
Support, education, inspiration, and running programs for amputees.
Website: http://www.disabilitiesunlimited.org/

Disability Related Products and Services
Numerous links to web resources on assistive technology, adaptive clothing, medical supplies, etc.
Website: http://www.makoa.org/

Disability Resources on the Internet
Numerous resources indexed by topic, state, and organization.
Website: http://www.disabilityresources.org/

Disabled Peoples' International
Network of national organizations or assemblies of disabled people, established to promote human rights of disabled people through full participation, equalization of opportunity and development.
Website: http://www.dpi.org/

Family Village
Informational resources on a variety of topics.
Website: http://www.familyvillage.wisc.edu/index.htmlx

National Organization on Disability
Raises disability awareness through programs and information.
Website: http://www.nod.org/

Open Directory - Disability
Links to 500+ Internet sites.
Website: http://www.dmoz.org/Society/Disabled/

Taconic Resources for Independence, Inc.
Independent living resources on the Internet
Website: http://www.taconicresources.net/

The Design Linc
Since 1995 we have provided you with on-line resources and information specifically geared toward people with disabilities and special design needs, as well as those involved in their care
Website: http://www.designlinc.com/

World Association of Persons with Disabilities
Internationally circulated newsletter.
Website: http://www.wapd.org/

World Association of Persons with Disabilities
WAPD advances the interests of persons with disAbilities at national, state, local and home levels.
Website: http://www.wapd.org



Deafblindness

American Association of the Deaf-Blind
National consumer advocacy organization for people who have combined hearing and vision impairments.
Website: http://www.aadb.org/

A-Z to Deafblindness
Provides information and resources to the general public about deafblindness and the people who live with both hearing and visual impairments.
Website: http://www.deafblind.com/

DeafBlind Children’s Fund
Helps families with children with deaf-blindness, provides information, stories, news and resources.
Website: http://www.deafblindchildren.org

DeafBlindResources.org
Forum, online monthly conferences, email with information on deaf-blindness.
Website: http://www.deafblindresources.org/

Montana IDEA Deaf – Blind Services
Technical assistance and training opportunities for people with deaf-blindness.
Website: http://www.opi.state.mt.us/DBServices/

National Consortium on Deaf-Blindness
Resources, information, technical assistance, services like job opportunities, trainings, and internships related to and for people with deaf-blindness.
Website: http://www.nationaldb.org/

National Family Association for Deaf- Blind
Non-profit organization, that serves individuals with and disabilities and people associated with deaf-blindness by providing them with resources, links and information.
Website: http://www.nfadb.org



Deafness

Deaf.com
Online conferences, latest news, forums, online stores for the deaf community
Website: http://www.deaf.com/

Deaf Education
Information, curriculum materials, instructional strategies for education of deaf students.
Website: http://www.deafed.net/

Deaf Info Web Site - Everything You Wanted to Know Abour Deafness
Information on deafness and links to deaf resources.
Website: http://www.zak.co.il/d/deaf-info/old/home.html

Deafness Research Foundation
Research, resources, research grants, hearing health glossary and much more on deafness
Website: http://www.drf.org/

Hearing Loss Web
Wide range of information, employment and education opportunities, resources, articles, medical information, hearing products and services and much more.
Website: http://www.hearinglossweb.com/

Info to Go (from the Laurent Clerc National Deaf Education Center )
Provides a wide variety of resources and information about hearing impairments in people 21 years of age and younger.
Website: http://clerccenter.gallaudet.edu/InfoToGo/index.html

Medicinenet.com – Deafness Center
Information, resources, health news, references, glossary and much more about deafness.
Website: http://www.medicinenet.com/deafness/index.htm

National Association of the Deaf
Grassroots advocacy organization that seeks to safeguard the civil and accessibility rights of people with hearing impairments.
Website: http://www.nad.org/

Registry of Interpreters for the Deaf
Search the RID website for information about interpreters for the deaf.
Website: http://www.rid.org

Self Help for Hard of Hearing People, Inc. (SHHH)
Goal is to improve the lives of those with hearing impairments through advocacy, education, and self-help.
Website: http://www.shhh.org/

TDI
TDI promotes equal access in telecommunications and media for people who are deaf, hard-of-hearing, or deaf-blind.
Website: http://www.tdi-online.org/

The Deaf Resource Library
An online collection of reference material and links intended to educate and inform people about Deaf cultures in Japan and the U.S.
Website: http://www.deaflibrary.org/



Developmental Disabilities

CA-Community Options, Inc.
Group serving Central and Southern California that specializes in finding Certified Family Homes to enable adults with developmental disabilities to lead their lives with as much independence as possible.
Website: http://www.communityoptions.com/

Developmental Disability Resource Center
Employment, resources, services like job skills trainings, vocational and family services and much more.
Website: http://www.ddrcco.com/

MedlinePlus – Developmental Disabilities.
Resources, information, references, glossary, research, latest news, articles, and much more on developmental disabilities.
Website: http://www.nlm.nih.gov/medlineplus/developmentaldisabilities.html

National Association of Developmental Disabilities Councils
Links to state developmental disabilities councils web sites.
Website: http://www.nacdd.org/

Ohio Developmental Disabilities Council
The Ohio Developmental Disabilities Council (ODDC) is a planning and advocacy body committed to community inclusion for people with developmental disabilities.
Website: http://www.ddc.ohio.gov/

QualityMall.org
Exemplary programs, publications, video and sound recordings, training curriculum, CD ROMs, and Web sites that represent efforts to enhance the quality of life for people with disabilities.
Website: http://www.QualityMall.org

The Florida Developmental Disabilities Council Inc.
News, resources, information, activities, advocacy, funding for people with developmental disabilities.
Website: http://www.fddc.org/



Diabetes

American Diabetes Association
The web site of one of the largest diabetes advocacy/support groups in the United States. The site contains a wide variety of information and resources aimed at helping people with diabetes lead normal lives.
Website: http://www.diabetes.org/

CDCs Diabetes and Public Health Resource
Diabetes information, resources, and links.
Website: http://www.cdc.gov/diabetes/index.htm

Children with Diabetes
The on-line community for kids, families and adults with diabetes.
Website: http://www.childrenwithdiabetes.com/

Diabetes.com
Information on Type 2 diabetes.
Website: http://www.diabetes.com/

Diabetties.org
Stories, resources and useful links on diabetes.
Website: http://www.diabetties.org/

Doctors Guide to Diabetes
The latest medical news and information for patients or friends/parents of patients diagnosed with diabetes.
Website: http://www.pslgroup.com/DIABETES.htm

eMedicine Health – Diabetes
General information on diabetes, medication, related articles and more.
Website: http://www.emedicinehealth.com/diabetes/article_em.htm

Juvenile Diabetes Research Foundation International
Research, information for the patients on life with diabetes and the scientists, newsletters, publication, advocacy and much more.
Website: http://www.jdf.org/

National Diabetes Education Program – 7 Principles for controlling your diabetes for life.
Basic diabetes information and also information about controlling the diabetes
Website: http://ndep.nih.gov/diabetes/pubs/7Principles_Eng.pdf

National Institute of Diabetes & Digestive & Kidney Diseases
National Institutes of Healths information and resource web site.
Website: http://www.niddk.nih.gov/



Down Syndrome

Down Syndrome
Resources, events, FAQs, medical information, toy store.
Website: http://www.nas.com/downsyn/

Down Syndrome .com
Wide range of resources and links on Down syndrome.
Website: http://www.downsyndrome.com/

Down Syndrome Educational Trust
Information, resources and educational services to the people and families with people having Down syndrome.
Website: http://www.downsed.org/

Down syndrome online
Online resources and information, books, online journals and publications.
Website: http://www.down-syndrome.org/

National Down Syndrome Congress
National Down Syndrome advocacy organization.
Website: http://www.ndsccenter.org/

National Down Syndrome Society
Promotes education, research and advocacy.
Website: http://www.ndss.org/

Recommended Down Syndrome Sites on the Internet
Links to Down Syndrome resources on the Internet.
Website: http://www.ds-health.com/ds_sites.htm

UPSIDE Down Syndrome
Links, information, newsletters and events for people with and associated with Down syndrome.
Website: http://www.telebyte.com/upside/



Epilepsy

Epilepsy Foundation
Nonprofit organization devoted to improving the quality of life for people with epilepsy and supporting the search for a cure. The site includes general information about epilepsy and resources for advocacy.
Website: http://www.epilepsyfoundation.org/

Familydoctor.org
Basic information on epilepsy. Answers to frequently asked questions.
Website: http://familydoctor.org/online/famdocen/home/common/brain/disorders/214.html

Kids Health – Epilepsy
Information related to epilepsy on children including a glossary of all related medical terms. The information can also be found in Spanish.
Website: http://69.7.225.164/kid/health_problems/brain/epilepsy.html

Medline Plus – Epilepsy
General information on epilepsy, such as prevention and treatment. This site includes videos and information on issues and related topics, financial issues, and more.
Website: http://www.nlm.nih.gov/medlineplus/epilepsy.html



Healthcare

Center for Medicare Advocacy, Inc.
A nonprofit organization devoted to providing education, advocacy, and legal assistance to help people with disabilities obtain needed healthcare.
Website: http://www.medicareadvocacy.org/

Families USA - The Voice for Healthcare Consumers
A national, nonprofit, nonpartisan organization striving for the goal of high-quality, affordable short and long-term health care for all Americans.
Website: http://www.familiesusa.org/

Medicare Rights Center
Provides information and resources for Medicare recipients.
Website: http://www.medicarerights.org

Mr. Long-Term Care
An online resource and advocacy center for improving the state and cost of long-term health care in the United States.
Website: http://www.mrltc.com/

National Citizens Coalition for Nursing Home Reform
A national grassroots organization that fights for nursing home residents' rights, quality care, resident empowerment, minimization of physical/chemical restraints, and other issues.
Website: http://www.nccnhr.org/

National Health Law Program
Resources on healthcare for low income people, including information on Medicaid, Medicare, child health, managed care, advocacy, etc.
Website: http://www.healthlaw.org/

The Cooper Institute
Website of an organization dedicated to empowering health care consumers to more effectively deal with a health care industry that is focusing more and more upon managed care.
Website: http://www.cooperinst.org/



Learning Disabilities and ADD

ADHD/ADD
Information and resource links.
Website: http://www.mentalhelp.net/poc/center_index.php?id=3

America's Literacy Directory
Website has contacts (listed by state) for learning disabilities.
Website: http://www.literacydirectory.org/?op=hotlines&type=ld

Attention Deficit Disorder Association (ADDA)
Information on resources, research, support groups, etc.
Website: http://www.add.org/

Attention Deficit Disorder Resources
Compiled by Virginia Office of Special Education.
Website: http://teis.virginia.edu/go/cise/ose/categories/add.html

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
CHADD is the national non-profit organization representing children and adults with attention-deficit/hyperactivity disorder.
Website: http://www.chadd.org

Council for Learning Disabilities
International organization that has been working to build a better future for students with learning disabilities. The website has news and discussions.
Website: http://www.cldinternational.org/

Davis Dyslexia Association International
Provides information, training, and provider list for learning disabilities.
Website: http://www.dyslexia.com/

Dyslexia Online
Provides a selection of articles on dyslexia. Learn about the symptoms, possible causes, and ways to prevent this learning disorder.
Website: http://www.audiblox2000.com/dyslexia_dyslexic/dyslexia.htm

LD Online
A guide to learning disabilities for parents, teachers, and students. A service of The Learning Project at WETA, Washington, D.C.
Website: http://www.ldonline.org

LD Resources
Provides extensive list of LD resources with links.
Website: http://www.ldresources.org/

Learning Disabilities Association of America
Wide range of information for parents and people with learning disabilities including resources, links, research, different events, news.
Website: http://www.ldaamerica.org

Misunderstood Minds
Companion site to a PBS special on learning differences and disabilities. Provides information for parents of students with LD; some information also appropriate for vocational settings.
Website: http://www.pbs.org/wgbh/misunderstoodminds/

National Center for Learning Disabilities
Provides information, resources, and referral services; develops seminars and workshops; conducts a public awareness campaign; and advocates for more effective policies and legislation to help individuals with learning disabilities.
Website: http://www.ncld.org/

Outside the Box! Helping Misunderstood Kids
Resources for ADHD/ADD/and related learning style differences.
Website: http://adhd.kids.tripod.com/



Mental Health

Center for Psychiatric Rehabilitation
A research, service, and training organization dedicated to improving the lives of people who have psychiatric disabilities.
Website: http://www.bu.edu/sarpsych/

Mental Health America
Information, medication, advocacy and other resources and actions on mental health.
Website: http://www.mentalhealthamerica.net/

National Alliance for the Mentally Ill
Advocacy, resources, news, links for people with mental illness.
Website: http://www.nami.org/

National Association of State Mental Health Program Directors
State mental health systems resources and information.
Website: http://www.nasmhpd.org/

National Mental Health Information Center - Center for Mental Health Services
The Substance Abuse and Mental Health Services Administration's (SAMHSA) National Mental Health Information Center provides information about mental health via telephone, a web site, and multiple publications.
Website: http://www.mentalhealth.samhsa.gov/



Mental Retardation

American Association on Intellectual and Developmental Disabilities (AAIDD)
AAIDD is an interdisciplinary organization of professionals (and others) concerned about mental retardation and related disabilities.
Website: http://www.aamr.org/

The Arc
Advocacy group focusing on mental retardation. Provides a wide variety of information and resources for its members.
Website: http://www.thearc.org/



Multiple Sclerosis

Multiple Sclerosis Association of America
Dedicated to enhancing the quality of life of people with multiple sclerosis, their families, and their friends.
Website: http://www.msaa.com/

Multiple Sclerosis Foundation
Information on research, services, etc.
Website: http://www.msfacts.org/

National Multiple Sclerosis Society
Resources, information, educational programs for people with MS.
Website: http://www.nmss.org/



Muscular Dystrophy

Muscular Dystrophy Association
Website contains a wide variety of information and resources aimed at helping people with neuromuscular disorders find treatment programs and lead normal lives.
Website: http://www.mda.org/

Muscular Dystrophy Family Foundation
Provides services, resources, home medical equipment and adaptive devices to help people with muscular dystrophy and their family members live independent and productive lives.
Website: http://www.mdff.org/



National and Regional

ADAPT - American Disabled for Attendant Programs Today
Group that advocates the increase of governmental support for out-patient assistance for people with disabilities, as opposed to the nursing-home focus that exists today.
Website: http://www.adapt.org/

Advocating Change Together
Website of a nonprofit disability rights organization run by and for people with developmental and other disabilities.
Website: http://www.selfadvocacy.com/

Allsup, Inc.
Provider of a variety of disability-related support services, including social security disability representation, disability financial services, and employer benefits coordination.
Website: http://www.allsup.com/Home.aspx

American Association of People with Disabilities
Advocacy organization for Americans with disabilities
Website: http://www.aapd-dc.org/

Bazelon Center for Mental Health Law
Advocacy group that promotes the civil rights of people with disabilities.
Website: http://www.bazelon.org/

Beach Center on Families and Disability
Website of a rehabilitation research and training center on public policies that affect families who have children with disabilities. Provides resources and information on disability issues.
Website: http://www.beachcenter.org/

Center for an Accessible Society
National organization designed to focus public attention on disability and independent living issues by disseminating information developed through NIDRR-funded research to promote independent living. Provides disability issues information for journalists.
Website: http://www.accessiblesociety.org/about.htm

Consortium for Citizens with Disabilities
A coalition of national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration & inclusion of persons with disabilities in all aspects of society. Approximately 100 disability organizations - includes member list with contact information.
Website: http://www.c-c-d.org/

Danville Services Corp.
Company serving Utah, Nevada, and Oregon that provides comprehensive residential and employment services for people with developmental disabilities.
Website: http://www.danserv.com/

Disability Information for Students and Professionals
Worldwide disability news, links to over 200 web resources, job listings, & discussion forum.
Website: http://www.abilityinfo.com

Disability Resources on the Internet
Nonprofit organization dedicated to locating disability information from a variety of resources and providing links to it in an organized, easy-to-understand format.
Website: http://www.disabilityresources.org/

Disabled American Veterans
Support/Advocacy group devoted to increasing the reintegration of American military veterans with disabilities into society.
Website: http://www.dav.org/

Growing Strong
Provides information concerning blindness, mental health, and epilepsy.
Website: http://www.growingstrong.org/

National Assistive Technology Advocacy Project
National program to provide free legal information regarding access to assistive technology for people with disabilities.
Website: http://www.nls.org/natmain.htm

National Association of Developmental Disabilities Councils
Links to state developmental disabilities councils web sites
Website: http://www.nacdd.org/

National Council on Disability
NCD's purpose is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities.
Website: http://www.ncd.gov/

National Council on Independent Living
Advances the independent living philosophy
Website: http://www.ncil.org/

National Fair Housing Advocate Online
Focuses on housing discrimination issues prohibited by the Federal Fair Housing Act, which bars discrimination based on race, color, national origin, sex, religion, disability, or familial status.
Website: http://www.fairhousing.com/

Physicians Disability Services, Inc.
Workbook for Social Security Disability applicants
Website: http://www.disabilityfacts.com/

Syracuse University Center on Human Policy
Syracuse University based policy, research, and advocacy organization involved in the national movement to insure the rights of people with disabilities.
Website: http://thechp.syr.edu/

TASH
International organization concerned with human dignity, civil rights, education, and independence for all people with disabilities.
Website: http://www.tash.org/

World Association of Persons with Disabilities
Nonprofit organization devoted to informing and advocating on behalf of all people with disabilities. The group provides a variety of resources on its web site in furtherance of that goal.
Website: http://www.wapd.org/



Post Polio Syndrome

Gazette International Networking Institute
GINIs mission is to enhance the lives and independence of polio survivors, ventilator users, and others living with disabilities by promoting networking and advocacy, health care research, and by coordinating international conferences.
Website: http://www.post-polio.org/

MossRehab ResourceNet
Links to post polio syndrome organizations.
Website: http://www.mossresourcenet.org/polioorg.htm

Polio Connection of America
Resources and links for polio survivors.
Website: http://www.geocities.com/w1066w/

Polio Experience Network
Newsletter, resources, & links for people with PPS.
Website: http://www.polionet.org/



Short Stature

Little People of America
Wide range of resources on dwarfism, includes medical, legal, organizations - also has store, chat rooms, and listservs.
Website: http://www.lpaonline.org/



Spina Bifida

Children with Spina Bifida
Provides information and resources to parents who have children with Spina Bifida.
Website: http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx

Spina Bifida Association of America
Mission is to promote the prevention of spina bifida and to enhance the lives of all affected.
Website: http://www.sbaa.org/



Spinal Cord Injury

National Spinal Cord Injury Association
Empower people with spinal cord injuries with information on resources, projects, employment, etc.
Website: http://www.spinalcord.org/

Neurotrauma Registry
A revolutionary tool to help individuals who have sustained a traumatic brain injury, spinal cord injury, or other complex neurotrauma.
Website: http://www.neure.com

SCI Info Pages - Spinal Cord Injury Information
A free resource for those with a spinal cord injury, or other disabling injury or disease of the spine. Provides health information and resources related to spinal cord injuries.
Website: http://www.sci-info-pages.com/

Spinal Cord Injury Information Network
Provides resources and links for spinal cord injury information.
Website: http://www.spinalcord.uab.edu/



State and Local

Liberty Resources - Philadelphia Center for Independent Living
Liberty Resources, Inc. is a Center for Independent Living for the Philadelphia area, which advocates for and works with persons with disabilities to ensure civil rights and equal access to all aspects of life.
Website: http://www.libertyresources.org/

MI-Michigan Disability Rights Coalition
Grassroots advocacy organization dedicated to supporting the civil rights of all people with disabilities.
Website: http://www.copower.org/mdrc/MDRC.htm

NY-The Advocacy Center
Located in Rochester, NY, this group assists many New York state residents with legal and community programs that focus upon disability issues.
Website: http://www.advocacycenter.com/

OH-The Inclusion Network
A Cincinnati-based disability-rights group seeking to expand the opportunities available to people with disabilities in the Cincinnati area.
Website: http://www.inclusion.org/index-graphic.asp

OR-People First of Oregon
An Oregon-based advocacy group that strives for the empowerment of people with developmental disabilities.
Website: http://www.people1.org/

SD-South Dakota Braille and Talking Book Library
Provides books on tape and in braille for people living South Dakota who are blind.
Website: http://www.sdstatelibrary.com/b&tb/index.htm

The Whole Person Inc.
The Whole Person Inc. assist people with disabilites to live independently and encourages change within the community to expand opportunites for independent living.
Website: http://www.thewholeperson.org

TX-All Walks Of Life
Advocacy group devoted to tackling the seldom-discussed issue of violence against and abuse of people with disabilities.
Website: http://www.awol-texas.org/



Substance Abuse



Tourette Syndrome

Tourette Syndrome Association, Inc.
Information about Tourette Syndrome.
Website: http://www.tsa-usa.org/




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Family Center on Technology and Disability (FCTD)
1825 Connecticut Avenue, NW 7th Floor Washington, DC 20009-5721
phone: (202) 884-8068 fax: (202) 884-8441 email: fctd@fhi360.org
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